Guidelines to support someone with an Incomplete Spinal Cord Injury

Supporting a person with an incomplete spinal cord injury (iSCI) involves promoting safe functional recovery while gradually encouraging independence in daily life. Because some motor and sensory pathways remain intact, purposeful activity, repetition, and appropriate challenge can support neuroplasticity (the nervous system’s ability to reorganize and strengthen remaining neural connections).

Family members and caregivers play a vital role in this process. By applying rehabilitation principles consistently at home and during everyday activities, they help extend the benefits of therapy beyond the clinical setting and support long-term recovery and quality of life.

Therapists putting Lokomat on a Patient

Important note: All recommendations described below should be applied only when medically approved and under the guidance of qualified rehabilitation professionals (physicians, physiotherapists, occupational therapists). Individual needs vary depending on injury level, overall health, and clinical status.

1. Encourage autonomy through active participation

Encourage the person to participate in daily activities to the greatest extent safely possible. Allow them time to try, initiate, and complete tasks on their own, offering assistance only when necessary. Active participation supports neural recovery, builds confidence, and reduces the risk of learned dependence.

2. Use assistive products wisely. Support, don’t replace

Assistive tools and devices should help bridge functional gaps without unnecessarily replacing abilities that are preserved or in recovery. The goal is to support independence while still challenging the nervous system to remain active and engaged.

Patient walking on Lokomat exoskeleton

3. Integrate Therapy into everyday life

Skills and movements practiced during therapy should be reinforced during daily routines. Simple activities such as reaching, transferring, standing, or walking with support provide valuable opportunities for repetition and motor learning outside structured therapy sessions.

Patient on Walker VIew

4. Adjust assistance and tools based on progress of the Spinal Cord Injury

Recovery after iSCI is dynamic. As strength, balance, and control improve, assistance and adaptive devices should be gradually reduced or updated. Regular reassessment ensures that support continues to challenge the individual appropriately and encourages continued progress.

5. Prioritize self-care and postural hygiene

Encourage regular movement, postural changes, and safe hygiene practices. Postural hygiene (maintaining healthy body alignment and changing positions regularly to avoid overload or pressure) is essential. Avoid maintaining the same position for long periods to reduce pressure injury risk and maintain joint mobility.

Patient neurorehab session with Omego

6. Explore complementary tools to maintain muscle quality

When recommended by rehabilitation professionals, tools such as electrical stimulation, resistance bands, or ergometers can help maintain or improve muscle function. These interventions support circulation, reduce muscle atrophy, and contribute to overall functional readiness for activity.

7. Encourage standing whenever medically safe

When medically indicated, supported standing can be an important part of rehabilitation. Regular standing may contribute to bone health, circulation, digestion, respiratory function, and postural control, while also supporting functional mobility goals.

Neurpshychology session with Myro Device.

8. Make movement and activity part of the daily routine

Encourage regular, meaningful movement throughout the day—not only during therapy sessions. Incorporating activity into everyday life helps reinforce strength, coordination, endurance, and independence over time.

What to avoid

Prolonged immobility

Avoid long periods of inactivity whenever possible. Even when movement is limited, appropriate positioning, assisted movement, or adaptive strategies should be used. Prolonged immobility increases the risk of stiffness, muscle weakness, pain, and other secondary complications.

Stagnation with assistive devices or orthoses

Avoid using the same aids indefinitely without reassessment. Assistive devices and orthotic equipment should evolve with the person’s functional stage, adapting as strength, balance, and control improve.

Generalist consultations instead of specialist follow-up

Management of spinal cord injury should include regular follow-up with professionals experienced in spinal cord rehabilitation. Specialist input allows for more precise adjustment of therapy, equipment, and long-term goals.

Physiotherapists adaptiong Lokomat to a Pediatric Therapist

Recovery after an incomplete spinal cord injury is an ongoing and evolving process. Families and caregivers play a central role by encouraging independence, integrating therapeutic principles into daily life, and adapting support as abilities change.

With consistent practice, safe encouragement, and thoughtful use of assistive tools (always under professional guidance) everyday activities become powerful opportunities to support recovery, independence, and quality of life.

If you have any questions or would like to learn more about our services, please don’t hesitate to contact us.

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Prim. dr. Josip Glavić

specijalist neurolog – ravnatelj Poliklinike Glavić Dubrovnik i Zagreb

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